Synopsis

Thanks to Christophe for stopping by to see us at LEGEND! Christophe, 37, was diagnosed on April 25, 2024, with Charcot’s disease (ALS)—an incurable condition that progressively paralyzes the muscles and makes breathing without assistance impossible. Married and a father of two, he had to give up his job as a prison guard as the disease progressed. Charcot’s disease, or ALS, is described by the World Health Organization as the cruelest disease in the world, leaving patients with a life expectancy of just 24 to 36 months.